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Lori47 says:
I have certainly heard of this being surrounded by the medical community my entire life and it is surely not the greatest condition to have. I hate to write down platitudes but from your friendship here I know that you, like me, can't fight the odds against us and persevere! Absolutely beautiful page and a great way to tell your story!!! SBF helps me keep my sanity for sure! *Big Hugs* ~Lori
Mar 8, 2015
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MaryWonder says:
I had never heard of this either. My heart goes out to you having to deal with daily pain. You have a wonderful positive attitude which I am sure will touch the hearts of many who are also suffering. Thank you for sharing this with us
Mar 8, 2015
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Cheryl C says:
Awww bless you, that really touched my heart, so sorry to hear about your illness and the daily pain you suffer but glad that you have managed to stay thankful for all the good things in your life and that you have your faith and the strength to carry on. xxxxx
Mar 8, 2015
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ComputerGeek says:
I all to well understand. But it does make us stronger and with a little help from your friends we can find time to smile
Mar 8, 2015
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scrapping lee says:
I too had never heard of this disease. I am sorry that you have to deal with so much pain on a daily basis. It is wonderful that you can find things to smile about and have developed a closer relationship with our Maker.
Mar 8, 2015
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