I used to love to be out, walking, running, swimming, airobics and so on. But now I have to find new hoobies. I have got MS (Multipel Skleros) They say I have sense I was 21 but I did not notice anything before I was 38, so I´m lucky, I have many memories before I get ill. I used scrapbooking to rest, I have to rest a lot and it is very boring!! *lol* I wan´t to get out more. I can walk but not so far and I have some problems with my balance!!
Jul 11, 2009

Oh, I thought Narcolepsy only happened to men.... I had a teacher once who had Narcolepsy and he fell asleep in the midle of a sentence :)
I have Fibromyalgia and I am hard affected of Psoriasis artritis (that is a raumatic illness), several other things also, but they alone dont make me disable so I dont think of them so much :)
I am lucky to live in a country where people with cronic illnesses that makes them disabeled, can stay home and get a pay from the goverment.
Some days are bad, then I scrap more :) Other days I am active almost like before I got ill. And some other days I am just sad.... and sad.... This is because the mind reacts to all this constant pain with beeing sad.
But I am a positive person and I am of those who see the glass half-full, not half-empty :)
Great group!
Feeling togetherness is so important when we are so alone with our condition!
Thank you so much for inviting me!
Hugs to everybody!
Liluz
Jul 14, 2009

I feel a little like the 'well' person here:) I have deep chronic depression, anxiety attacks frequently, bi-polar, migraines, arthritis in my lower back and Crones Disease as well as memory loss from childhood - anything having to do with anything emotional, but other than that, I'm ready to party when any of you are:):) I really love scrapbooking but as some of you will see I don't put many pages out as it takes me so long to get what I want to do into my head and then putting it together.
I realize that my problems are here for a reason and if I can be of any help to anyone else that's what the Lord has put me here for. (I'm afraid to post this as I sound like such a whiner.....sorry)
Hugs to all,
Rosemary
Jul 14, 2009

I have had a Degenerative Deteriorating Spine for years but doesn't cause too much of a problem until it goes out, but I can' lift anything heavy for fear of just that, then I am down for a couple weeks, to add to that I need a knee replacement as my knee hinders me from standing or walking for over a few minutes. My hip is also been giving me problems lately.
My husband is my life saver as he does so much for me. I still cook all meals and house work except for the floors, and that absolutely kills me.
I am about 100 lbs. over weight and I know that if I could loose this weight, it would probably solve a big portion of my problems. Of course obesity is a disability in itself.
Thanks for listing to me and thanks for this group.
Jul 14, 2009

Wow. I feel bad for all of you and wish I could give all of you a huge hug from me! If I could I would!
I suffer from a rare disease in the brain called Intracranial Hypertension. It mimics a brain tumor. I have too much fluid in my brain that refuses to drain which creates pressure within my skull which in turn produces unbearable headaches,nausea, and caused my optic nerves to swell which in turn damaged my eyesight so now I see 3-dimensional spots and lines. What causes it? Docs don't have a clue but they suspect being overweight. I need to lose 50-70 lbs or I can have a shunt put in my brain to help drain the fluid from my brain down to my stomach but I'm trying to lose the weight but w/no results yet so I am looking into the lap band & seeing if insurance will pay.

Jul 18, 2009

Hello!!
I have mixed disorder of the personality that me provokes constants assaults of anxiety and periods of depression. Disorder of the nourishment (bulimia). Hepapitis B chronic (HBV) and also rheumatoid arthritis (RA) that is to chronic, systemic inflammatory disorder that may affect many tissues and organs, but principally attacks the joints producing an inflammatory synovitis that often progresses to destruction of the to articulate cartilage and ankylosis of the joints.
For the (RA) I am following a treatment with methotrexate from 5 weeks ago.
But I always say " Smile, might be worse "
Jul 19, 2009

Its when I read about other persons situation, like here, that I really can feel that what I have is really not so much.....
I like what ofelia roca say here:
"Smile, it could be worse" :)

I always say:

"I am sure I will be better tomorrow"

:)

Hugs to all!
Liluz
Jul 20, 2009

To all my friends here, thanks for sharing, sometimes it is hard to share although it is therapeutic to discsuss these things and here we know people won't feel sorry for us, but will support us and listen. To you all, I wish you better health, but keep on scrapping...we all can do that as well as anyone else! Love donna
Aug 2, 2009

I joined because I have a son with Mental Retardation. He functions on the level of an 8 year old. But he is soooo happy, he does not notice that there is any difference in himself compared to others. He is happy from morning till night. I have always been very involved in his school years and now he goes to a sheltered workshop everyday and works in their kitchen. He brings home his paycheck and is sooo proud. He is very artistic,does hook rugs,puzzles, and paints and decorates wooden bird houses.I havetaught him to clean his room, to run the vacumn etc. He is very good at it too! I do not know anyone who has not fallen in love with him on first sight! About 4 years ago he was operated on for Melinoma..My heart was broken. He is doing fine right now. He truly is a gift ..
Aug 2, 2009

I joined because I'm wheelchair dependend. I had a motorcycle accident three years ago.
Aug 5, 2009

Welcome everyone...being disabled doesn't keep us from being creative. I love all of your pages. The therapy of scrapping is amazing and the fact that we aren't joined by our disabilities, but by our love for scrapping!
Sep 22, 2009

The 1st time I was diagnosed cancer, I was in total shock! How could I have breast cancer? I gave it my best shot with radiation and chemotherapy..and then it came back! That was a heavier blow! I have been operated 5 times. Now I have a stage IV Mestastic breast cancer that has spread to the lungs.The initial part was FEAR! Then I shifted quickly into, " I can deal with it!" People can live with with a metastatic disease!!
Lots of hugs from Italy..Claudia
Jan 6, 2010

i have severe arthritis in my wrist , have had 2 surgeries including a wrist fusion, thumb only partially works. typing is very difficult this results in zillions of tpy os as fingers don't move as i want to and lot sof problems with using space bar as thumb just plops down
Jun 9, 2010

Hey all. My name's Michelle, I've been scrapping off and on for the last few years. It's cyclic, haha, I guess I'm wishy-washy that way :) I have a disease called dermatomyositis. It's a rare autoimmune form of muscular dystrophy. I also have small fiber neuropathy that came with it. Scrapping is my outlet for creativity and a huge stress reliever. I love finding new tutorials on the web, and shopping for graphics? I could spend hours 'window' shopping for kits. I'm addicted! lol I'm glad I found this group. I was thinking about starting one and happened upon yours! Wishing you all well. xoxo
Mar 12, 2013